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Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS, by PT Kevin Muldowney
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Kevin Muldowney, MsPT has been treating people with Ehlers-Danlos Syndrome since 2005. As a physical therapist, he has developed an exercise protocol to help stabilized the many joint subluxations/dislocations associated with this genetic disorder. This book is intended for the person diagnosed with EDS to both inform them about the healthcare team needed to properly treat them as well as to guide both the physical therapist and their patient with EDS through the Muldowney exercise protocol. This book will cover such topics as: how joints sublux in this population, how to find the right physical therapist, how to exercise without injury and what physical therapy techniques works best. By the end of this protocol people with EDS should be better informed about what is going on with their body and how to make it better.
- Sales Rank: #28707 in Books
- Published on: 2015-07-17
- Original language: English
- Number of items: 1
- Dimensions: 11.02" h x .88" w x 8.50" l, 2.66 pounds
- Binding: Hardcover
- 400 pages
Most helpful customer reviews
38 of 39 people found the following review helpful.
On my good days, the sacrum holds and the up slips ...
By ellen smith
I have been following this protocol for over a year and a half and at the age of 65, the time I have put into it has been totally worth it. On my good days, the sacrum holds and the up slips have gone away. It takes time, determination and commitment to follow up and do the exercises but they are not hard and do in time strengthen your muscles, thus allowing you to hold better. This book is not meant for you to take home and do yourself. You need to find a willing PT that will use the book as the guide and watch you try each new step and then check your body to be sure you held while doing the workout. It is safe, gentle, must be geared to your body and it's needs. I am thrilled with my results and love that this is allowing me to be proactive with my life!!!
36 of 38 people found the following review helpful.
This exercise regimen is a godsend for EDS!
By Rachel Stevenson
This book is for you if:
-like most of us, you have only been able to find physical therapists who were ineffective, made your joints more unstable or even severely injured you
-you would like your money to go toward a compassionate physical therapist who believes EDSers and believes IN EDSers. You'll be proactively helping prevent the deterioration of your health, instead of relying on healthcare professionals who are either too dismissive or who give up and tell you you'll never be active again
-your EDS is severe enough to limit your physical abilities in any way
-you are in any amount of pain that you'd like reduce
This book was written by my physical therapist, Kevin Muldowney, who is one of the only PTs in the country to specialize in Ehlers-Danlos. (Seriously, EDSers drive in from out of state to see him.) Unlike physical therapists who give you a "cookie cutter" set of exercises designed for people with normal collagen, he became an expert at treating EDS bodies by systematically examining a substantial number of EDSers over long time periods, as he slowly added in exercises he developed specifically with EDS biomechanics in mind. He has an extremely high success rate of decreasing pain and disability in almost his EDS patients (most of whom I know personally). You can bring this book to any "manual physical therapist" in the country, and it will teach them exactly how to treat you. A lot of the pain reduction occurs slowly over time, but some strong, temporary relief happens immediately with the manual corrections of your subluxations that this book outlines (it's MUCH safer than chiropractors if your PT is well-trained). This is a long exercise regimen, but it builds slowly and works WITH you and your body. Itreally pays off in the long run--your joints will be more stable than they have been in years!
25 of 25 people found the following review helpful.
the other support needed so that you have the best results, and of course
By Cynthia Uribe
I just received my copy of this book last night. I've scanned all of the book and read the chapters for the patient and I'm so impressed already. It gives so much more than I expected. Not just an exercise book but full support for anyone with EDS, including how to work with your therapist, the other support needed so that you have the best results, and of course, the exercises all laid out carefully and with full support.
My only wish is that it was paperback. A bit heavy for me at this stage of health. And it would be nice to have it spiral bound. So I hope those are options for the next one.
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